Daily Archives: December 1, 2014

Day one

Welcome to MutteringFool.com and Holidailies 2014.  I have done this every year, some years doing fabulously, others (2010, I’m looking at you) doing very little.

First, a quick introduction even though most people who wander here are long term Holidailies readers.  I’m Suzy. 39 and rapidly approaching 40, although much happier about the impending 40 than I was turning 30.

My husband is Tony, we’ve been together 18 years, married 16 of those. He is my rock. We have no children of our own, but have 13 nieces and nephews, plus several other children that we consider family.

I’m a freelance writer and reporter. My main work is writing for the local weekly newspaper. The focus of my work for them is local government and politics. Basically, I spent a lot of time writing about meetings. However, I absolutely love it and wouldn’t change it for the world,.
As of today, December 1, I am six years out from a nephrectomy. In 2008 I was diagnosed with renal cell carcinoma-clear type. Stage 1B, grade 2. Basically, I had a pretty good size tumor (just 1/10 of a centimeter from stage 2) that was completely encapsulated in my right kidney. It, and the kidney, were removed at MCV in Richmond, VA, by Dr Guruli and a student, Dr. Worthington.

While, I am not in a state of “no evidence of disease” (as there is no cure for RCC, you just get a NED state) as I have things in my lungs of unknown origin. They could be metastatic disease, but have been stable for a year. We watch, and wait, as there is limited systematic treatment of RCC. (no traditional chemo, but other drugs that may slow growth.)

As you can see I abuse commas and parentheses.

I am also disabled. I have had bone and muscle issues since birth that we didn’t find out about until I was an adult. I have degenerative disc disease, also. Then, the cancer surgery brought on severe lymphedema in my right leg.

Prior to my most recent debacle, I used a cane or wheelchair depending on the day. It slowed me down and made working difficult. Then, I fell and broke my heel and ruptured my Achilles’ Tendon in August. I had to have surgery for it, spending much of August, all of September, and part of October in the hospital, then in a nursing home for rehabilitation.

During all of that I started a Go Fund Me page to help purchase a mobility scooter and a lymphedema pump. The scooter was funded, and purchased, and we are still raising funds for the pump. (you can go here if you wish to donate, or share the link.)

Again, welcome to Holidailies 2014!